Dedication Celebration

The Vanderwall quints have started the New Year with a celebration!

Grandpa Brett, Nana B and the V7
Grandpa Brett, Nana B and the V7

This past Saturday we dedicated our children to God at Blackhawk Church here in Madison. It was an amazing experience to gather with family and friends. I have to admit it was difficult to take in the service as I was surveying our children and trying to keep track on when it was our turn. But, as I sit and write this post I am reflecting on the “village” that was present to support our family in this intentional dedication, and what dedication truly means. I- again- am overwhelmed by how God’s love and provision continues to wash over are family.

On stage with Grandpa Turzy, Grandpa Brett, Nana, their Godparents (Alex & Danielle) at Blackhawk Church's Child Dedication.
On stage with Grandpa Turzy, Grandpa Brett, Nana, their Godparents (Alex & Danielle) at Blackhawk Church’s Child Dedication.

Overall, the day went very well. The kids looked adorable in their outfits, they did great in church, and we were able to celebrate this faith-filled moment alongside the people that mean the most to us: their grandpa’s, grandma (Nana), God-parents (Alex and Danielle), and very close friends.

The Whitakers and the V-7
The Whitakers and the V-7

The dedication concluded with a personal blessing for our children, read by Alex, and a prayer from the youth pastor.

Praying

Our personal blessing reads:

Dearest Theo, “God’s Gift” to us, Isabella, who we “Devote to God,” Lillian and Kali, our “Pure ones,” and Elliott, who reminds us “Jehovah is God.”

May the Lord always walk with you on your journey in life, and sprinkle you with His love and light.

May you learn to love with kindness and grace, and know within your soul: Truth, courage and faith.

You will be wrapped in the warmth of family and friends, and our love for you will never end.

Today, we present you to God, your Holy Father, and commit you to Him for His glory and no other.

We also chose a life verse for each one.

For Theo, Corinthians 16:13-14. “Be on guard. Stand firm in the faith. Be courageous.Be strong. And do everything with love.”

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For Bella, 1 Peter 3:3-4 “Do not let your adorning be external—the braiding of hair and the putting on of gold jewelry, or the clothing you wear— but let your adorning be the hidden person of the heart with the imperishable beauty of a gentle and quiet spirit, which in God’s sight is very precious.”

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For Lily, Ephesians 2:8-10. “For by grace you have been saved through faith. And this is not your own doing; it is the gift of God, not a result of works, so that no one may boast. For we are his workmanship, created in Christ Jesus for good works, which God prepared beforehand,that we should walk in them.”

Smiley lily

For Kali, Philippians 4:8-9. “whatever is true, whatever is honorable, whatever is just, whatever is pure, whatever is lovely, whatever is commendable, if there is any excellence, if there is anything worthy of praise, think about these things. What you have learned and received and heard and seen in me—practice these things, and the God of peace will be with you.”

The Kali Smirk

For Ellie, Psalm 139:13-14. “For you formed my inward parts; you knitted me together in my mother’s womb.I praise you, for I am fearfully and wonderfully made. Wonderful are your works; my soul knows it very well.”

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Looking Back and Looking Forward

Babys First cmas

All we wanted for Christmas was a Silent Night, and we got it! 

DSC_1128Vin

At the conclusion of the holiday season, we celebrate not only the kids sleeping through the night but the passing of a memorable year. It certainly is a time of recollection; I ask myself: where have we been and where are we going?

A, 12-25-2013

It is hard to believe that at this time last year we were not even pregnant. We were amidst the emotional journey of trying to conceive. After years of trying, we found out in March, 2013 that we were going to have a family all at once.

The news that we were going to have quintuplets definitely took a few weeks to digest, and even longer to wrap our minds around. As many know, the emotional journey did not stop at conception but rolled on. With discussions about multi-fetal reduction and attempting to navigate the best possible perinatal care, our pregnancy was a trying journey.  In May, I said goodbye to Frank, family and friends in Madison and hello to Mesa. Arizona brought new friends and the best doctor I have ever worked with. It truly seems like just yesterday that we hopped on a plane, praying that we would not be too late to have our urgent surgery. I also cannot believe that Frank and I were apart for almost 3 ½ months. Despite the miles that separated us, our marriage grew greatly during that time.

Then during the early afternoon on August 3, a nurse came into my hospital room and shared that were going to have babies in a few hours. With a bang we had a beautiful family. Many know the trials and tribulations that followed; the life of a NICU parent.

I sit amazed. I am truly awestruck at how God’s hand has cared for us every step of the way, His provision through His strength, Spirit and people never left us and continue to be ever present.

One of the many ornaments and generous gifts that we received from from our family at the Community Christian Church (Lincolnshire, IL). Many thanks!
One of the many ornaments and generous gifts that we received from from our family at the Community Christian Church (Lincolnshire, IL). Many thanks!

I look at my beautiful children, each a unique blessing, and am overwhelmed by His handiwork. The quints are now 5 months old. They are happy, healthy and developing right on schedule.

Lillian Grace
Lillian Grace
Kali is not so sure about this Santa character.
Kali is not so sure about this Santa character.
But, Kali definitely loves her Grandpa!
But, Kali definitely loves her Grandpa!
Theo loves his pinky hippo
Theo loves his pinky hippo
Bella sporting her Christmas outfit
Bella sporting her Christmas outfit
Baby Ellie is pretty in pink
Baby Ellie is pretty in pink

What else could we ask for?  Where are we going?

Instead of choosing a self-improvement goal, I resolve to soul-improvement and to continue to be present with my family and to truly seek what the Lord desires for our family and I. On January 11th, we will dedicate our children to God at Blackhawk Church. I am excited to commit each one of our miracles to their heavenly Father for His will and His purpose.

I close with a prayer from Billy Graham,

 “Our Father and our God, as we stand at the beginning of this new year we confess our need of Your presence and Your guidance as we face the future.

We each have our hopes and expectations for the year that is ahead of us—but You alone know what it holds for us, and only You can give us the strength and the wisdom we will need to meet its challenges. So help us to humbly put our hands into Your hand, and to trust You and to seek Your will for our lives during this coming year.

In the midst of life’s uncertainties in the days ahead, assure us of the certainty of Your unchanging love.

In the midst of life’s inevitable disappointments and heartaches, help us to turn to You for the stability and comfort we will need.

In the midst of life’s temptations and the pull of our stubborn self-will, help us not to lose our way but to have the courage to do what is right in Your sight, regardless of the cost.

And in the midst of our daily preoccupations and pursuits, open our eyes to the sorrows and injustices of our hurting world, and help us to respond with compassion and sacrifice to those who are friendless and in need. May our constant prayer be that of the ancient Psalmist: “Teach me, O Lord, to follow your decrees; then I will keep them to the end” (Psalm 119:33).

We pray for our nation and its leaders during these difficult times, and for all those who are seeking to bring peace and justice to our dangerous and troubled world. We pray especially for Your protection on all those who serve in our armed forces, and we thank You for their commitment to defend our freedoms, even at the cost of their own lives. Be with their families also, and assure them of Your love and concern for them.

Bring our divided nation together, and give us a greater vision of what You would have us to be. Your Word reminds us that “Blessed is the nation whose God is the Lord” (Psalm 33:12).

As we look back over this past year we thank You for Your goodness to us—far beyond what we have deserved. May we never presume on Your past goodness or forget all Your mercies to us, but may they instead lead us to repentance, and to a new commitment to make You the foundation and center of our lives this year.

And so, our Father, we thank You for the promise and hope of this new year, and we look forward to it with expectancy and faith. This I ask in the name of our Lord and Savior, who by His death and resurrection has given us hope both for this world and the world to come. Amen.”  © 2008 Saturday Evening Post Society.

Merry Christmas from the V-5

Mr. Theodore and Mrs. Bella Clause and their cute lil’ elves want to wish you and yours a very Merry Christmas and a Blessed New Year!

The V-7 wishes you and yours a Merry Christmas!
The V-7 wishes you and yours a Merry Christmas!
Mr. and Mrs. Clause in the midst of a marital dispute.
Mr. and Mrs. Clause in the midst of a marital dispute.
It looks like they made up!
It looks like they made up!
Ellie the elf is pooped from her long night building toys and spreading cheer!
Ellie the elf is pooped from her long night building toys and spreading cheer!
It looks like Lily is all tuckered out, too.
It looks like Lily is all tuckered out, too.
Kali is hitting that high C in every carol she sings!
Kali is hitting that high C in every carol she sings!

All of these fun photos are compliments of our dear friend, Liz. Check out her work at: https://www.facebook.com/MrsSkiPhotography

A Day in the Life

v22

Several people inquire about what life is like for one of the Vanderwall quints. Many have come to visit and have peered into the world of the V-5. Some are surprised at their cool, calm and collected nature. Others have witnessed the choir of screeching alley cats (aka all 5 crying at once), which is enough to scare anyone into abstinence. All have to take a moment to allow reality to settle in that there truly are five.

When I was pregnant I was searching long and hard for example schedules and routines for high order multiples. I found suggestions but nothing clear and concise, so I thought I would share with the world what a day in the life of the Vanderwall quints looks like.

The life of an infant is fairly plain and simple; it consists of eating, sleeping and pooping. But, as a child ages the time allocated to these changes.

Kali Mae is ready for lunch!
Kali Mae is ready for lunch!

When the kiddos first arrived home at 2 ½ months, or a gestational age of 40 weeks, they ate every 3 hours and slept for the majority of the 3 hours between feedings. We inherited their care time schedule from the hospital, which was 12am, 3am, 6am, 9am, 12pm, 3pm, 6pm, and 9pm.

Aunt Cindy feeding Kali
Aunt Cindy feeding Kali

About a month ago we consolidated the evening so, there was only one evening shift: 1am, 5am, 9am, 12pm, 3pm, 6pm, 9pm.

Cousin Guy feeding Ellie
Cousin Guy feeding Ellie
Grandpa George burping Ellie
Grandpa George burping Ellie

More recently, we decided to challenge the quints to sleep through the night and. they did it! According to the research literature, “sleeping through the night” is 5 hours, however most, including any sleep-deprived parent or caregiver, would agree that that simply is not enough. However, it’s a start. The quints care times are now 5-6am, 9am, 12pm, 4pm, 7pm, and 10pm. It continues to amaze me at how adaptable they truly are. We are very grateful!

Those who have visited know the in’s and out’s of the quint’s cares, but I’ll give you the rundown for those of you watching from home. The sequence of care times mimics that of the hospital. We tried to maintain patterns that the kids knew.

“Cares” begin with whoever is awake, which is typically Ellie and Theo, but on some occasions everyone wakes up at the same time. Most of the time half of them wake up on the hour and then 2-3 wake up at the half hour. This works out perfectly for our feeding sequence.  We start by changing their diapers and then feed them one-by-one. It will be a glorious day when they can hold their own bottles, but for right now each one takes 8-45 minutes to feed depending on how cooperative they’re feeling. That means that one “care” session can last 45 minutes to over 2 hours. When I’m running this ship solo, the average care session takes 90 minutes, but Frank and I can cut that time in half.

Lily catching some p;oct-meal zzz's
Lily catching some post-meal zzz’s

After everyone is fed, they lay back down for a nap, some quiet-alert time, or play-time. We try to rotate their positions from lying on their back, to tummy time, to sitting upright in the swing or bouncy seat, or to a slight incline in a boppy.

Kali & Theo relaxing
Kali & Theo relaxing

We believe its important to vary the positions and locations of the room.

In between care sessions, we spend time documenting their “I’s & O’s” or “In’s & Out’s,” making bottles, and doing the laundry. It is important for us to track their care sessions because when we go to the doctor they always ask how many “voids” and “stools” they have each day, and there’s no way I could recall that for each one without writing it down. A sample of our tracker is below:

Date: Care Time
    Feeding (mL) Void Spit-up Stool
Percent of Daily Goal Total mL    

So, a day in the life of the V-5 consists of 6 feedings, 90 ounces of breast milk, about 6 scoops of Neosure, 18 teaspoons of rice cereal, at least 50 diapers, an abundance of boogers, drool, stinky butts and spit-up, and a whole lot of love!

Quiet and alert Bella
Quiet and alert Bella

Five Little Angels

A special thank you to Hayley for the beautiful photos that she took of our children at 3 months. She is a very talented photographer. Her patience over the five-hour shoot was divine!

Be sure to check back at her homepage for more Photos by Hayley.

We have a few photos to share below, and are excited for the rest!

Theodore Joseph
Theodore Joseph
Isabella Marie
Isabella Marie
Lillian Grace
Lillian Grace
Kali Mae
Kali Mae
Elliott Rose
Elliott Rose

It Takes a Village

The African proverb, “It takes a village to raise a child” is holding true for the V-5. It simply takes more than one person to not only teach a child the ways of life, but to care for their physical needs. Consider Maslow’s hierarchy of needs, if a child is unable to satisfy the lower needs, physiological & safety, then it will be that much more difficult to achieve the more advanced needs of love, belonging and esteem.

HeirarchyOfNeeds

In the last few weeks, we have been blessed by our own village of family and friends who have paid the quints a visit and helped Mom and Dad not only care for the kiddos, but care for themselves, too!  It has been such a blessing to have regular volunteers. Now, the majority of the quints care times have someone here to offer another hand. I must admit I do cherish my one-on-one time with the kiddos.  Sometimes it is nice when we get to have cares with just them and I. Yes, it does get a little crazy at times, but I have found if I turn on oldies and sing and dance with them; they love it! A fave is “Baby,  I’m Yours” by none other than Mama Cass!

Many, many thanks to our family who has made the trek up from Northern IL many times to help and visit.

Uncle JD with Ellie & Kali
Uncle JD with Ellie & Bella

Thank you to our church family who have come over at all hours of the day, including 3am, and at the drop of a hat to help us. Thank you to the Madison Area Mom’s of Multiples for yummy meals and snacks. Thank you to our new friends and co-workers who have also been there for us in the last month.

Kristy, Nana & the Kiddos
Kristy, Nana & the Kiddos
Teresa & Bella
Teresa & Bella

We truly could not do it without you!

Baby Central: The V-5’s Domain

The Vanderwall home has quickly transformed into baby central with pack and plays, bouncy seats, burp cloths and pacifiers abounding. Everywhere you look you see signs of our little ones. We are also trying hard to create an environment at home that is conducive to growth and development.

Theo is home!
Theo staking out in the Pack N Play

We hope that the V-5’s domain will:

  • Help them differentiate between night and day.

During the day the kiddos stay on the main level in well-lit areas. Here they are exposed to the sounds and hustle and bustle of day time. At night we keep them upstairs in their nursery where it is dark and quiet. We also are intentional about not talking or playing with them during their night-time care times. We are down to business at 12am and 3 am. This has proven to be very helpful in getting them on their care schedule.

  • Practice good nutrition.

All of the quints enjoy breastmilk for all their meals. However, since they were premature it is common practice to fortify their milk for additional calories, protein, vitamins and minerals (sodium, calcium, phosphorus to name a few).  Their calorie goals vary quite a bit and like adults are based on their weight, ranging from 108-120 Calories per kilogram body weight. On average breastmilk has 20 calories per ounce, whereas the quints require 24 to 26 calories per ounce to grow at the desired rate. Therefore, we are adding Similac Neosure to their milk. We also are sure that they get their multivitamin (poly-vi-sol) daily.

Rare Occurrence- Ellie is quiet and alert, awaiting lunch.
Rare Occurrence- Ellie is quiet and alert, awaiting lunch.
Mommy & Lily
Mommy & Lily
  • Exercise their Mind.

Lots of time and attention is poured into identifying strategies to develop baby’s brains. There are an assortment of toys, books, apps, programs, etc. that promise to make your baby a genius. However, I’m a firm believer in simplicity and believes that attention, bonding and communication, or ABC’s, develop the brain just as efficiently as any of these other tools. I have actually learned that some toys touted for brain development can actually over-stimulate the child and increase the risk of ADHD/ADD.

left_right_brain

Currently, the V-5 enjoy tracking exercises where we use a black and white images or toys and move the image from left to right. This activity strengthens communication between the left and right hemispheres of the brain, or communication across the corpus callosum. We also love to chat and sing with our little ones. An ideal time to chat is when we are changing them, because we are 12-14 inches away from their little faces and are able to maintain their attention.

  • Massage for Emotional Well-being. 

There are many benefits of baby massage, including stress management. Massage can help to foster emotional health and promote self-soothing.  Touch via gentle strokes stimulates the central nervous system to produce more serotonin, the happy hormone, and create less cortisol, a stress hormone. Typically, as a result the infants breathing and heart rate will slow and they become more relaxed. Often times, this relaxed state does not result in sleep but rather a quiet, alert state perfect for play-time, snuggle-time, or positive feeding interactions.

  • Massage for their Tummies.

Our quints are a gassy bunch. It is no joke that post-feeding sounds much like a barnyard. Therefore, anything we can do to ease their gas pains and help their digestion is a must. Frank loves to take them on bicycle rides all over “town,” moving their little legs in a circular fashion. They have also come to enjoy this and almost do it on their own when you lay them on their backs. Frank tends to take them to the Candy Shoppe, where Mom prefers a trip to the Puzzle Place. We also practice the “I Love You” strokes on their bellies, which can help to stimulate movement throughout the digestive tract. A fool-proof method for gas relief is to place them on their tummies with rounded shoulders and knees tucked up and to glide your hands down their back while supporting their bottoms.

  • Stretch their Bodies.

Since sleep is one of their favorite past times, these little ones can get awful stiff. We continue to try to prevent flattening of their heads and promote good neck mobility. Moving their limbs up and down and inward and outward can help to preven

t these little hedgehogs from staying all bound up. We also like “windshield wipers” with their bent knees to help open up their hips.

Tummy time is also a great way foster good motor development and upper body strength.  It is best done when the infant is alert. Some of the quints love tummy time and others are still learning to like it. It can be quite a frustrating position for them, so we are sure to keep the sessions short and sweet.

Ellie Lays
Elliott is prepping for her calisthenics
  • Encourage Good Coordination.

Newborns are able to open and close their hands, but often times these movements are reflexive. During the first three months of life grasping becomes more intentional and an ideal time for developing foundational skills for hand-eye coordination. The quints are already starting to show signs of good coordination as they reach and grab items from their mobiles, as well as, objects near their face…including mommy’s hair.

Quints circled up for Yoshi Calisthenics
Quints circled up for Yoshi Calisthenics on Halloween
Yoshi egg line-up
Now it’s time for Follow-the-Lily.

All of these activities certainly add up for a full day, but there’s nowhere else we’d rather be!

One Happy Family

The V-7 is one happy family! After one week of having the quints home, reality has settled in and it truly feels like we are one big family. There have certainly been some trying moments in the last week, but overall we are amazed at how well the children have adjusted to being at home. They slipped right into our “care” schedule, are getting to be more comfortable in their cribs, and their feeding skills are drastically improving.

Baby Pinwheel: Lily (Green), Theo (Blue), Ellie (White & Pink), Kali (Yellow), Bella (Pink)
Baby Pinwheel: Lily (Green), Theo (Blue), Ellie (White & Pink), Kali (Yellow), Bella (Pink)

 

We have made several trips to their primary doctor for weight checks. Their growth is a primary concern upon discharge and thus remains a primary goal in the outpatient setting. Often times their weights will be checked every few days, but more often one time per week. All of the quints are growing somewhere between 15 to 30 grams per day, which is an appropriate growth velocity for their age. The higher end is almost an ounce per day. We are excited to see them tracking on their growth curves. Often times, we are not sure where they are packing away the pounds, but when it comes to Theo we are positive its building that melon head and that Bella is tucking it away in her sweet cheeks.

This week has also been quite busy socially! The quints have met their great Grandpa and Grandma, great Aunts, and cousins.

Beautiful Family
Beautiful Family
Love from Aunt Debbie. I think she's done this before.
Love from Aunt Debbie. I think she’s done this before.
Love from Aunt Darla
Love from Aunt Darla
Theo & Grandma Vanderwall
Theo & Grandma Vanderwall

It is such a pleasure to see all of the love these little kiddies are getting. It makes for one happy family!

Hail, Hail, The Gang’s All Here

On Saturday, October 20, we welcomed home the last, but certainly not least, of the V-5- Lillian Grace. It was a very happy homecoming and exciting to know that we are beginning the next chapter of our family’s life together.  We are truly overjoyed every time we look to our living to room to see all of the bouncy seats, previously filled with their teddy bears, now filled with our beautiful children; It is quite a surreal moment.

The picture of all 5 Quints together in the same frame!
The first picture of all 5 quints together in the same frame! From left to right: Bella, Theo, Ellie, Kali, Lily.

It has been quite the past few weeks getting everything ready around the house for all the little ones and finally transporting them home. Here’s a quick look at how it all went down:

Mommy and Daddy build the babies a beautiful new nursery.
Mommy and Daddy build the V5 a beautiful new nursery
Bella prays to Jesus, asking him to bring her and her brother and all her sisters home.
Bella prays to Jesus, asking Him to bring her, her brother, and all her sisters home very soon
v5 Diplomas
Bella’s prayers are answered and NICU diplomas for all five babies appear on the counter of the nurse’s station
Then, Kali and Ellie join him.
One by one, the quints pass their car seat test and are cleared to go home from the hospital
Now the dishwasher is full of bottles...
Now, the dishwasher at the Vanderwall residence is always filled with baby bottles…

Mommy and Lily

and mommy and daddy's arms are full of babies. The end.
and mommy & daddy’s arms are always filled with babies

Indeed, getting the opportunity to be with the quints 24/7 has opened our eyes to their little quirks and deepened our understanding of their budding personalities. There were some assumptions we made about these little ones early on, which are proving to be a bit off, and some that were and still are spot on. Here’s the latest update on each of the quints, in the order they appear in the group photo above.

Isabella Marie

Our Sleeping Beauty, would much rather spend her day catching some zzzz’s than anything else. She is a tough one to arouse, which is good and bad. It’s a struggle at meal times, but a joy when everyone is wound up and she is just relaxing. But, when she does wake up and join the party she can be quite the happy little girl.

Bella Beauty
Sleeping Bella
Bella Role Call
Excitable Bella

Theodore Joseph

Tutti Frutti, leads this Barnyard bunch in their animal chorus with his manly toots. Theo is definitely a little boy, but also our little cutie. He has the most precious face, and loves to lock eyes with you. He continues to be a champ when it comes to downing milk and apparently has shared this skill with his sisters because their feeding skills are getting much better.

Theo 2
Looks like our cute Mr. Tutti has something brewing
Theo is home 3
Theo passed out after one of his trademark high-volume feedings

Elliott Rose

Ellie has earned the nickname, “Cray Cray” for her recent frantic antics. Our experience living near Cabrini Green tells us this little one is proving to be quite the little gangster, rolling around the west-side of Madison with her hat pulled up, or down, and we swear she’s throwing signs, too. She also is learning how to play her parents and can turn on and off the tears like a light switch. She is still our little doll face, but definitely not the saving grace we thought she would be. She is our feisty little peanut.

Quintessential Ellie
Quintessential Ellie
Ellie be rollin
Ellie is dancing to the beat of her own drum

Kali Mae

Our little screecher monkey, still can hit the high “C” with the best of them. But, she has proven to be more mild mannered than we thought and is turning into a fair self soother. She still has the most definitive features with her dark, thick hair and darker complexion. She also has a smile that can melt anyone’s heart.

Sleepy time Kali
Sleepy time Kali
Kali
Kali Mae will make you an offer you can’t refuse

Lillian Grace

Our silly Lily, tends to still be our quiet observer. During her alert times of day, she will sit and just look around for hours. She also loves to be spoken to, and truly appears to be listening empathetically.  I often think she will be a counselor one day due to these budding listening skills. She is also our silly one with the most adorable smile. She will smile in any circumstance, which is a wonderful reminder to smile, too.

The alert lil' Lily Bug
Our alert lil’ Lily Bug
"Tell me more," says Lily.
“Tell me more,” says Lily.

We are cherishing each and every moment with these little ones. Now that we are all home we are excited for our family time spent reading books, checking out black and white baby flash cards and laughing our way through the feeding frenzy which comes around every 2-3 hours. It’s a riot!

The Race Home

Stork-with-Blue-BlanketThe quints are one week from being full-term babies and the race is on! Bets have been placed by many on their healthcare team as to who will make it home first.

This past week has provided some challenges on their road home, including getting their 2-month vaccinations, which included:

The doctors warned us that the kids may not be themselves for about 24 hours after the vaccinations and they were right. The most common symptoms include:

  • Fever
  • Pain at the injection site
  • Poor appetite
  • Fatigue/Sleepiness
  • Increased Spells
  • Periodic breathing

Everyone spiked a fever and ended up sweating through their clothes. Their appetites were not the best the following day either due to them being a bit sleepier. Honestly, the best way to describe it is that all of their “issues” from a few weeks back, reared their ugly heads.

Silly Kali Mae who may be one part screecher monkey and another part parakeet.
Silly Kali Mae who may be one part screecher monkey and another part parakeet.

For example, Kali who tends to “bear down,” meaning to grunt to either pass gas, poop, or protect her airway from reflux, was doing so much more often. When she bears down she often forgets to breathe… she isn’t the best multi-tasker, yet. The frequent bearing down led to poor respiration and thus desaturation (decreased oxygen in her blood) where she had to be put back on her nasal cannula to receive extra air flow. Luckily, she only had to remain on it for 24 hours. The unfortunate news is that because she had this “Spell” she got 5 days tacked on to her stay before she can be discharged. So, Ms. Kali’s discharge is now projected for October 15th.

Lillian Grace playing peek-a-boo when she is supposed to be snoozing.
Lillian Grace playing peek-a-boo when she is supposed to be snoozing.

Lily and Bella are now focusing primarily on waking up and staying alert enough to eat by mouth. These two are the last with their feeding tubes. They are currently meeting 50% of their nutritional needs by mouth and need to get to 80% before they can consider sending them home.

Bella who somehow has a striking resemblance to Dwight Schrute from the Office in this photo.
Bella who somehow has a striking resemblance to Dwight Schrute from the Office in this photo.

So, that leaves Mr. Theo and Ms. Elliott who have been favored by Frank and I to win the race home for some time. These two, despite their bowel surgeries, will most likely be the first ones home and arriving via stork, or Honda Odyssey, this weekend!

Mr. Theo snug as a bug in his sleep sack.
Mr. Theo snug as a bug in his sleep sack.
Our little doll face, Elliott Rose.
Our little doll face, Elliott Rose.

In other news, Frank and I are doing well. We are so excited that our NICU journey is coming to an end, and are more than ready to start the next chapter at home! Frank is coming out of his busy season at work and is planning on taking some time off as the kids trickle home.

image_2

I am excited to have him home, so we can establish what life will look- aka a routine- as a family. I am also excited to share that I have returned to my pre-pregnancy weight. I share this for three reasons:

  • One, I believe it is a testament to good nutrition and regular exercise (just practicing what I preach),
  • Two, it is clear to me that weight truly is just a number because my body is definitely not what it was before in terms of composition therefore, operation “rebuild your temple, based on I Corinthians 6:19-20), remains in full swing, and
  • Three, because it has opened my eyes to a whole new population of people I want to empower for better health- Moms!

We also wanted to share with those who were praying for our insurance appeal that we had our grievance hearing. Unfortunately, the committee decided to uphold their decision to deny payment of our perinatal care in Arizona. We would appreciate continued prayer for this journey as we trudge on to the next level. It has become a moral battle of proving the value of life. We are now fighting for more than just our five miracles, and feel as though we have the opportunity to speak for parents who were encouraged to consider multi-fetal reduction and may have moved ahead with those decisions, and thus had to grieve those losses. We also will not back down because we believe in the importance of having a choice in healthcare, and speak for those who may have thought at one point they had no other choice but to give in, or to give up. Most importantly, we also speak for all of the children who did not get a chance at life. We are fired up and ready, so please pray that the committee in this next round would be more open to our appeal.

As always, we thank you for your well wishes, prayers and support. Please know you are a valued citizen of the village that is helping to raise the V-5!